On the funny upside the Emt woman riding in the back with me keeps dozing off lol
Jordan and Daddy
Sometime in the nice weather at the playground
Tuesday, August 27, 2013
Ugh
I think the big guy is testing is again... Details when I can, it's bad enough I only have one hand >.<
Friday, April 19, 2013
Week of hell has no comparison to this.....
I know I will probably catch hell from the wife on posting this one, but when something is hanging on your mind you just have to get it out some time. Then again, I tried to wake her but she was out :) she's too cute when she sleeps :)
This month, we finally moved out and about to our own place. Jordan even gets his own room, something that he was happy about... in theory.
He stayed with his grand parents (wife's parents) for most of the last couple weeks while we moved stuff, and settled stuff here. We thought this would be a great way to transition him here, when they brought him back down earlier this week O...M...G...
He laid the smack down on us, this was not even a medication week either!
Out of no where he started throwing a tantrum and fit that he didn't want to be here, he "wanted to go home" despite every-bodies attempt to convince him he was home. Even the fact all his toys were here didn't help.
He latched onto her parents when they were preparing to leave, going to the most extreme thing a parent never wants to hear from their child, "I hate you".
This kid is almost 5 and he has already started this!! Where the hell is a kid this age picking this crap up from? It was so bad, I even refused to go downstairs with them to say bye to him, something I did not regret until tonight.
I went to bed early, with a headache and not feeling well. I eventually fell aseleep and was feeling better until a series of nightmares hit me. I have not had a nightmare of this caliber for quite some time (including our real life nightmare the night he was diagnosed). Long story short, with out too many details, we "received" a call that no parent ever wants to get, especially when their child is not with them.
I have been up since midnight because of this... I guess I will try to get back to bed now, I have to be up at 5 for work :/
this is not going to be a fun rest of the night...
thanks for the vent session everyone :)
This month, we finally moved out and about to our own place. Jordan even gets his own room, something that he was happy about... in theory.
He stayed with his grand parents (wife's parents) for most of the last couple weeks while we moved stuff, and settled stuff here. We thought this would be a great way to transition him here, when they brought him back down earlier this week O...M...G...
He laid the smack down on us, this was not even a medication week either!
Out of no where he started throwing a tantrum and fit that he didn't want to be here, he "wanted to go home" despite every-bodies attempt to convince him he was home. Even the fact all his toys were here didn't help.
He latched onto her parents when they were preparing to leave, going to the most extreme thing a parent never wants to hear from their child, "I hate you".
This kid is almost 5 and he has already started this!! Where the hell is a kid this age picking this crap up from? It was so bad, I even refused to go downstairs with them to say bye to him, something I did not regret until tonight.
I went to bed early, with a headache and not feeling well. I eventually fell aseleep and was feeling better until a series of nightmares hit me. I have not had a nightmare of this caliber for quite some time (including our real life nightmare the night he was diagnosed). Long story short, with out too many details, we "received" a call that no parent ever wants to get, especially when their child is not with them.
I have been up since midnight because of this... I guess I will try to get back to bed now, I have to be up at 5 for work :/
this is not going to be a fun rest of the night...
thanks for the vent session everyone :)
Saturday, March 9, 2013
monthly week of hell...haha
So this is our monthly week of hell.
Jordan is on Decadron for the week. For a while it was not too bad, as he was used to it.
But this week is different, they up-ed his dose >.<
>,<
Sometimes his outbursts of "roid-rage" as I call it are quite funny, but the screaming is intolerable at times.
Daddy is not his favorite person this time of the month, LOL
------------------
On an unrelated note, a little Peanuts for your Saturday!
Jordan is on Decadron for the week. For a while it was not too bad, as he was used to it.
But this week is different, they up-ed his dose >.<
>,<
Sometimes his outbursts of "roid-rage" as I call it are quite funny, but the screaming is intolerable at times.
Daddy is not his favorite person this time of the month, LOL
------------------
On an unrelated note, a little Peanuts for your Saturday!
Sunday, February 17, 2013
The final countdown!!! (Again?)
OKAY EVERYONE THIS IS IT!!
Your last chance send those donations to make THON 2013 the best one ever!! Text THON TO 50555 to donate, or go to www.thon.com
---------------------
We're on the last day!! BJC was at capacity already at 7 this morning!
Luckily we are factored into the attendance even when we are not there.
Jordan was a bit grumpy this morning so I went on stage alone with the music therapy group and sang along.
Right now were sitting tight for family hour prep...
It's the final four Mike and Colleen!!! You can do it!!!
------------------------------------------
Hey guys they said Sit :P
$12, 374,034.46 !!!!!
Hugging Mike
Your last chance send those donations to make THON 2013 the best one ever!! Text THON TO 50555 to donate, or go to www.thon.com
---------------------
We're on the last day!! BJC was at capacity already at 7 this morning!
Luckily we are factored into the attendance even when we are not there.
Jordan was a bit grumpy this morning so I went on stage alone with the music therapy group and sang along.
Right now were sitting tight for family hour prep...
It's the final four Mike and Colleen!!! You can do it!!!
------------------------------------------
$12, 374,034.46 !!!!!
Hugging Colleen
Saturday, February 16, 2013
Saturday..
Day two, all the spirit is up and going!
This will be an attempt at a continued update.
215pm
Girls just wanna have fun! ;-)
The wish program is happening right now, and there is a guest DJ, one of the kids.
The dancers are about to play a matching game.
And two line dances, first is girls only ewwww
The boys ended up winning this, seccond time "in history"!!!
2:45pm
THE BJC IS AT CAPACITY!!!! Holy crap!!! This doesn't usually happen until Sunday!
Check out the live feed on www.thon.org
4:45pm
Jamminnout to a live band right now!
BJC still at MAX!
Hang in there Mike and Colleen!!!! You can do it!!!!
Sometime after 5pm
Mike Eileen and I went on an adventure.
We ran around to the back area. Went to the south annex, got a pic with one I the girls from the (tennis?) team. Got a pretzel.
We did a video blog on YouTube, and did the water social. We were on stage "dancing" then chugged water lol.
7:--PM...
Sooo, mail call was coming up shortly, and Jordan fell asleep! lol, that kid I swear. He was sleeping even in our arms in all that noise on the floor!!
We ended up leaving around 7:30/8-ish. We went to dinner, waiting for everyone to regroup we sat in the family lounge, I talked with a couple parents.
We went to dinner, and went back to the room to unwind. Today was a pretty fun day, the energy in the BJC is super max, OMG, I am a little scared for tomorrow!
I do feel bad though. I wish we could have stayed there longer, and spent more time on the floor with Mike and Colleen. I feel this year we spent more time running around than with them.
If you two read this later, please know I really do wish we spent more time on the floor with you! Tomorrow (with the exceptions of us being in the show in the morning) I personally will make sure I am with you guys as much as possible!
I don't think you guys really know how much it means that you are doing this!
Stay strong and finish strong! You can do it!
This will be an attempt at a continued update.
215pm
Girls just wanna have fun! ;-)
The wish program is happening right now, and there is a guest DJ, one of the kids.
The dancers are about to play a matching game.
And two line dances, first is girls only ewwww
The boys ended up winning this, seccond time "in history"!!!
2:45pm
THE BJC IS AT CAPACITY!!!! Holy crap!!! This doesn't usually happen until Sunday!
Check out the live feed on www.thon.org
4:45pm
Jamminnout to a live band right now!
BJC still at MAX!
Hang in there Mike and Colleen!!!! You can do it!!!!
Sometime after 5pm
Mike Eileen and I went on an adventure.
We ran around to the back area. Went to the south annex, got a pic with one I the girls from the (tennis?) team. Got a pretzel.
We did a video blog on YouTube, and did the water social. We were on stage "dancing" then chugged water lol.
7:--PM...
Sooo, mail call was coming up shortly, and Jordan fell asleep! lol, that kid I swear. He was sleeping even in our arms in all that noise on the floor!!
We ended up leaving around 7:30/8-ish. We went to dinner, waiting for everyone to regroup we sat in the family lounge, I talked with a couple parents.
We went to dinner, and went back to the room to unwind. Today was a pretty fun day, the energy in the BJC is super max, OMG, I am a little scared for tomorrow!
I do feel bad though. I wish we could have stayed there longer, and spent more time on the floor with Mike and Colleen. I feel this year we spent more time running around than with them.
If you two read this later, please know I really do wish we spent more time on the floor with you! Tomorrow (with the exceptions of us being in the show in the morning) I personally will make sure I am with you guys as much as possible!
I don't think you guys really know how much it means that you are doing this!
Stay strong and finish strong! You can do it!
Day one in a nut shell
I guess the best way to put it is in pictures!
Here is the album on my Facebook page! It should be enabled for total public view, if you want to look and cant see, just comment below I will be sure to fix!
Oh wow, it is sooo different from last year. It is not as over whelming but it is something to come into that place, the BJC, and feel the energy!
Man I am tired, being up since 6ishAM, and being there till 1AM and up even now!
I still feel the energy! Glad to see some familiar faces.
There were a few faces we did not see, and it saddens me to say it too. But it puts things into perspective, when you see that other kids, even your own child are still doing well and everything is done for them (and those no longer with us).
There is nothing to compare to THON that I can imagine!
Check out the Live Stream to get a glimpse, but nothing can top being there your self!! YOu may see me there too in the bottom right, that is where we are hanging with our Bee House crew.
Do not forget, please, please donate! You can donate online, or by Texting "THON" to 50555 (charged to your phone bill)
Media coverage from my area today:
http://www.nbcphiladelphia.com/news/local/Dancing-Begins-at-PSUs-THON-191490931.html
*Video* 6ABC - Kenneth Moton!
Here is the album on my Facebook page! It should be enabled for total public view, if you want to look and cant see, just comment below I will be sure to fix!
Oh wow, it is sooo different from last year. It is not as over whelming but it is something to come into that place, the BJC, and feel the energy!
Man I am tired, being up since 6ishAM, and being there till 1AM and up even now!
I still feel the energy! Glad to see some familiar faces.
There were a few faces we did not see, and it saddens me to say it too. But it puts things into perspective, when you see that other kids, even your own child are still doing well and everything is done for them (and those no longer with us).
There is nothing to compare to THON that I can imagine!
Check out the Live Stream to get a glimpse, but nothing can top being there your self!! YOu may see me there too in the bottom right, that is where we are hanging with our Bee House crew.
Do not forget, please, please donate! You can donate online, or by Texting "THON" to 50555 (charged to your phone bill)
Media coverage from my area today:
http://www.nbcphiladelphia.com/news/local/Dancing-Begins-at-PSUs-THON-191490931.html
*Video* 6ABC - Kenneth Moton!
Friday, February 15, 2013
Thursday, February 14, 2013
It begins soon...
In less than 24 Hours now... We THON... Go to www.thon.org to watch everything live!!
I will post updates as I can including pictures!
Monday, February 11, 2013
Supporting THON
Coach Chambers is getting behind THON and supporting by donating $10 for every student attending Thursdays Game, Check it out!
Countdown is T-minus 4Days...
Countdown is T-minus 4Days...
Saturday, February 9, 2013
Another year in the bag
Not sure why this DID NOT POST... grr well better late than never
Well it's that time of year again.....
Mistletoe-ing, the Christmas songs getting super annoying to us retail workers, cold-then nice-then cold, threats of snow and coal.
About a week and now going in two years since Jordan's diagnosis.
I still remember that drive out and up.
Today is another clinic day. It's going to be a Long one.... Spinal tap and the IV-IG.... Fun.
Today were also giving a gift to the child life department, a little tykes itykes.
So we just got done with the spinal tap about 15 min ago..... We got here on time at 930 too, of course the one time were on time, they're running behind.....ugghhhh
Waiting on the IVIG and vinchristine.
Well it's that time of year again.....
Mistletoe-ing, the Christmas songs getting super annoying to us retail workers, cold-then nice-then cold, threats of snow and coal.
About a week and now going in two years since Jordan's diagnosis.
I still remember that drive out and up.
Today is another clinic day. It's going to be a Long one.... Spinal tap and the IV-IG.... Fun.
Today were also giving a gift to the child life department, a little tykes itykes.
So we just got done with the spinal tap about 15 min ago..... We got here on time at 930 too, of course the one time were on time, they're running behind.....ugghhhh
Waiting on the IVIG and vinchristine.
T-minus one week
In one week we dance,
In one week we hope.
In one week we celebrate,
In one week we THON!
That's right, next week on Friday February 15th THON 2013 begins! What is THON you ask?
THON is a 46 hour dance marathon culminating each year of fundraising by Penn State university Students to benefit the Four Diamonds Fund at Penn State-Hershey Medical Center.
The Four Diamonds Fund helps with many aspects of the search for the cure for pediatric cancer patients and their families. It covers things like picking up the tab of where insurance leaves off, to Music Therapy, and most recently, helping to fund the new 207 MILLION DOLLAR Children's Hospital, set to open Spring of 2013!
From the THON Home page: Welcome to THON.org, the online home of the largest student-run philanthropy in the world! The Penn State IFC/Panhellenic Dance Marathon, affectionately known as THON, is a yearlong effort to raise funds and awareness for the fight against pediatric cancer. Since 1977, THON has raised more than $89 million for the Four Diamonds Fund at Penn State Hershey Children's Hospital. THON 2013 will take place from February 15th-17th, 2013 at Penn State's Bryce Jordan Center. We are excited to have you join us as we continue to make strides to find a cure.
Last year there were some who had doubts and questions on how things would turn out, but despite everything the grand total exceeded all exceptions and once again set a record!
$10,686,924.83 FTK!!! Thats right, despite it all everything worked out and pulled through because no matter how you look at it it was all done for the kids!
Go here to help donate, or find out how you can help!
I will post updates of what is going on as I can through out the weekend.
Check out the Live Stream of events all 47'ish hours of the event, or if you are near State College, PA come to the Bryce Jordan Center!
In one week we hope.
In one week we celebrate,
In one week we THON!
That's right, next week on Friday February 15th THON 2013 begins! What is THON you ask?
THON is a 46 hour dance marathon culminating each year of fundraising by Penn State university Students to benefit the Four Diamonds Fund at Penn State-Hershey Medical Center.
The Four Diamonds Fund helps with many aspects of the search for the cure for pediatric cancer patients and their families. It covers things like picking up the tab of where insurance leaves off, to Music Therapy, and most recently, helping to fund the new 207 MILLION DOLLAR Children's Hospital, set to open Spring of 2013!
From the THON Home page: Welcome to THON.org, the online home of the largest student-run philanthropy in the world! The Penn State IFC/Panhellenic Dance Marathon, affectionately known as THON, is a yearlong effort to raise funds and awareness for the fight against pediatric cancer. Since 1977, THON has raised more than $89 million for the Four Diamonds Fund at Penn State Hershey Children's Hospital. THON 2013 will take place from February 15th-17th, 2013 at Penn State's Bryce Jordan Center. We are excited to have you join us as we continue to make strides to find a cure.
Last year there were some who had doubts and questions on how things would turn out, but despite everything the grand total exceeded all exceptions and once again set a record!
$10,686,924.83 FTK!!! Thats right, despite it all everything worked out and pulled through because no matter how you look at it it was all done for the kids!
Go here to help donate, or find out how you can help!
I will post updates of what is going on as I can through out the weekend.
Check out the Live Stream of events all 47'ish hours of the event, or if you are near State College, PA come to the Bryce Jordan Center!
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